Resource Roundup: Late Summer 2024
PMP Pals Resource Roundup: Late Summer 2024 We're always scanning medical journals, practitioner magazines, cancer-focused blogs, and our partner websites for resources about this rare disease. Depending on where you are on your appendix cancer journey, you may be...
Media Kit: One in a Million 5K Run/Walk
Media Kit: One in a Million 5K Run/Walk Benefitting PMP Pals Network RELEASE DATE: August 6, 2024 EVENT DATE: September 14, 2024 5K RACE CONTACT: Sheri Doss, San Antonio appendix cancer survivor, sheridoss@pmppals.net 210-262-2538 PMP PALS CONTACT: Charmaine...
One in a Million 5K Run/Walk Benefits Global Rare Cancer Peer Community
Appendix cancer survivor and local San Antonian Sheri Doss spearheads local event to highlight health, wellness, appendix cancer, and a birthday she was not destined to see RELEASE DATE: August 6, 2024 EVENT DATE: September 14, 2024 5K RACE CONTACT: Sheri Doss, San...
Meet Up’24: Cool Things to Check Out in Scottsdale, AZ
Meet Up'24: Cool Things to Check Out in Scottsdale, AZ In our search for cool things to do in Scottsdale, we're fast realizing we need more time in The Grand Canyon State. In our idea grab from Top 10 Things to Do in Scottsdale, 25 Best Things to Do in Scottsdale. and...
Your Pals on HOPE Zoom: Hair Loss, Death Cafes, Multiorgan Transplant
Your Pals on HOPE Zoom: Hair Loss, Death Cafes, Multiorgan Transplant You never know what you are going to hear about on HOPE Zoom (register here)...last week, we shared our common experience and sought-after information on: Hair loss resulting from Lonsurf Hats vs...
Your Pals on HOPE Zoom: Feel the FEELS, Control, SSDI
Your Pals on HOPE Zoom: Feel the FEELS, Control, SSDI Twice a week, we gather online to talk about appendix cancer. Open to patients, care partners, and support people, HOPE Zoom allows us to ask questions, share our vulnerabilities, and draw on the strength of others...
Pals Living Life: Patient Advocate Lindsay B. Talks Fertility on SurgOncToday Podcast
Pals Living Life: Patient Advocate Lindsay B. Talks Fertility on SurgOncToday Podcast Hope Renewed: A Young Woman's Journey after CRS/HIPEC Pal Lindsay B. talked with three appendix cancer specialists on the Society of Surgical Oncology's podcast, SurgOncToday....
Meet Up’24: Scottsdale Necessities & Niceties
Meet Up'24: Scottsdale Necessities & Niceties Travel can be a bit prickly. Thanks to your input, we've gathered up a few details to help you enjoy your time in Scottsdale. Spend more time relaxing and getting to know your Pals, and less time searching for whatever...
Appendix Cancer on Radar: Making a Difference, Working Together
Appendix Cancer on Radar: Making a Difference, Working Together Amber is the official color of Appendix Cancer Awareness. It symbolizes the courage, strength, and resilience of appendix cancer patients, care partners, and their families. Working together, we aim to...
Pals Living Life: Raising Awareness of Appendix Cancer
Each year, the Mike Weber Sr. Memorial Foundation holds its annual fundraiser at White Beeches Golf & Country Club in Haworth, NJ. Family members honor the legacy of Mike Sr., an appendix cancer survivor whose legendary impact on his local community lives on in...
Create a 5K Race Day Team & Team Fundraiser Page
Teams are fun! Create a 5K Race Day Team & Team Fundraiser Page Welcome to the One In a Million 5K Run/Walk. It's way more fun to do with friends, family, and coworkers - let's make it a TEAM EFFORT! To be clear, you can run the race without fundraising and you...
Resource Roundup: Summer 2024
We're always scanning medical journals, practitioner magazines, cancer-focused blogs, and our partner websites for resources about this rare disease. Depending on where you are on your appendix cancer journey, you may be searching for information about current...
Setting Our Minds Straight
We don’t necessarily need a designated month to remind us how important emotional resilience is to our quality of life. Keeping a clear mental perspective affects our overall wellness, as well as our relationships with family and friends. But, it can be hard to...
Who’s Manju?
Each year, SSO/ACT extends the Gabriella Graham Patient Advocacy Award “to an individual or patient advocacy organization that has provided support and hope to patients and families facing cancers that are often treated with a regional treatment approach.” Pals...
Why We Go to SSO
Pals President Adele Jasion and Secretary-Treasurer Charmain Skillman attended the Society of Surgical Oncology’s Advanced Cancer Therapies (SSO/ACT) symposium in February 2024. Charmaine shares her perspective here. PMP Pals recently attended the meeting of the...
PALS ONLINE: Paul in Perth
Several Pals are very public with their illness, choosing to share their wellness journey online via YouTube, Instagram, Facebook, and Caring Bridge. All share the hope of helping a fellow appendix cancer survivor navigate the surprises of this diagnosis, along with...
PALS ONLINE: Jamie V.
Many of you may recognize Jamie V. as one of the “Pals Angels,” a HOPE Zoom moderator on Wednesday at 6pET/3pPT. She does a lot of volunteering for our group like mentoring other patients 1-on-1, assisting with graphic design (she helped with the 5K logo),...
John R., Caregiver Companion
John Razzano quickly slid into role of family caregiver when his wife, Mary, was diagnosed with our rare cancer in 2014. That meant playing head nurse, chief paperwork officer, cheerleader, and patient advocate. “During that time, I felt alone and isolated trying to...
Your Pals on Nausea
Anti-Nausea Suggestions from Your Pals The Technicolor Yawn, Praying to the Porcelain Goddess, Yodeling Groceries - call it what you want - Nausea and its close cousin, Vomit, are relentless foes when given space to flourish. Sometimes, we experience nausea during...
Stage 4 is Not My Finish Line
Stage 4 is Not My Finish Line The Milestone This year, on December 18, 2023, I will be celebrating my 20th wedding anniversary. I will also be marking the anniversary of my first cancer surgery on the same day, in 2019. It was just before Christmas, parts of the...
Hope Wrapped Up: Barad’s Blankets
In March 2022, when Lindsay Barad packed for her CRS/HIPEC hospital stay, she thought she over-packed. The one item that she didn’t bring along was a blanket and her first night in the hospital was freezing! The next morning, her father, Jim, stopped at a local...
Send in Your Gut-Sensitive Recipes
We all know that feeling - the Dreaded Belly Bomber - following an all-too-good-tasty meal. It's bittersweet and frustrating. But what are we to do about a sensitive gut, the by-product of a transitioning gastro system post-surgery? Some of us get a team...
Caregivers Guide Us Back to Life
Words cannot express the gratitude we have for our caregivers. Spouses, partners, siblings, parents, children, and friends step in to help us through challenging times laden with heavy physical demands and psyche-wrenching emotional waves. By their simple acts of...
Postcard from a Pal: Carrie R.
Ever wish you could share something special with all Pals, all at once? Want to update us on what you’ve been up to? Share a recent accomplishment or milestone? Brag about your garden or grandchildren? Tell a joke? Send your note (3-8 sentences, 1-5 photos) to...
Pals Perspectives: Racing With Stage Four
Stage 4 appendix cancer patient Ariel M. of Utah shares her inner thoughts and inspirations as she races on foot in Utah in 2023.
What Does HOPE Look Like?
What Does HOPE Look Like?
“We have HOPE for you!” has always been a PMP Pals catchphrase. But, what does that really mean? These impact stories and anecdotes give you glimpse of how HOPE showed up through PMP Pals…
Pals in the Kitchen Cookbook 2022 Holiday Edition
Welcome to our first cookbook ever — Pals in the Kitchen Holiday Edition 2022, A Compilation of our Favorite Holiday Recipes. Pals from all over the globe shared their grandma’s secret recipes, family heirlooms, traditional mainstays, and special occasion deliciousness in a gesture of solidarity. We share them here with you to bring you comfort and connection. After all, we have much to be grateful for this holiday season.
Pals Profile: Advocate, Marathoner, Fundraiser Lindsay B.
In December 2021, 6 months shy of my 40th birthday (and right after completing my 4th TCS NYC Marathon), I heard the three words that nobody ever expects to hear: “You have cancer.”
While in surgery to remove a large, complex ovarian cyst, they discovered a tumor in my appendix and what they thought might be mucin in my abdomen. My appendix, right ovary, and right fallopian tube were removed. Biopsies confirmed the tumor was a rare, stage IV appendix cancer called Low-Grade Appendiceal Mucinous Neoplasm (LAMN).
Dedication, Perseverance, & Longevity: Charmaine Skillman
Austin, Texas-based Charmaine Skillman celebrated 25 years of life since her diagnosis in 1997. Her story shares a persevering grit and takeaways from her quarter-century journey.
FOCUS ON PHYSICIANS: PAUL H. SUGARBAKER, MD
Volume 4 | Issue 1, 2021 PMP Pals is pleased to bring you this special edition of our newsletter, devoted to an interview with Paul H. Sugarbaker, MD. As part of our Focus on Physicians series, this article highlights his four decades of leadership in the treatment...