Your Pals on HOPE Zoom: Hair Loss, Death Cafes, Multiorgan Transplant
Your Pals on HOPE Zoom: Hair Loss, Death Cafes, Multiorgan Transplant
You never know what you are going to hear about on HOPE Zoom (register here)…last week, we shared our common experience and sought-after information on:
- Hair loss resulting from Lonsurf
- Hats vs going free scalp
- Travera tissue and mucin samples at the time of G-tube procedure rendered enough cells for testing of 5 chemos; Karla running with Folfuri after carboplatin & paclitaxel testing had zero effect on the tumor cell samples
- One patient uses chair yoga & Tai Chi to reduce stress with no need to get down and up from the floor
- Pal Lindsey W. has tried many alternative approaches (keto, eating all organic, sleep, heart rate) but feels managing stress with a meditation practice has had the greatest impact
- Misty takes high-dose turmeric at 3500mg/day and thinks that is working for her and keeping her cancer stable
- New immunotherapy coming out this year
- Yes, we have heard of The Death Cafe
- Possible off-label use of Ibrance https://www.ibrance.com/about-ibrance
- Exploring all our alternative treatment options like Cleveland Clinic’s multiorgan transplant program and listening in on an Intestinal Transplant Support Group
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