RESOURCE ROUNDUP: YEAR-END 2024

RESOURCE ROUNDUP: YEAR-END 2024

Unsplash-Bertt Jordan

Resource Roundup: Year-end 2024

A Caregiver’s Research: Appendix Cancer & Pseudomyxoma-Peritonei-PMP CRS-HIPEC compiled by Julian S. (click here)

Canadian Pal Julian S. is a care partner with his wife, Maggie. As part of their experience navigating appendix cancer and her ultimate treatment – CRS & HIPEC – they learned a lot along the way. Last updated September 14, 2024

Cancer-related Articles & Studies (5)

Appendix Cancer, Continuing Education (Dr. Azeberoje Osueni; Dr. Yuvraj S. Chowdhury, National Library of Medicine) August 2023
Mapping how cancers form and spread, (National Institutes of Health/NIH) November 2024
Most tumors in body share important mutations (NIH) September 2018
Y chromosome affects cancer growth, (NIH) July 2023
14 Micro Self-Care Practices That Take Less Than 60 Seconds, (The EveryGirl) October 2024

Got a resource to share with our Pals community? Email us the link for our next article round-up.

RESOURCE ROUNDUP: WINTER 2024

RESOURCE ROUNDUP: WINTER 2024

PMP Pals Resource Roundup: Winter 2024

Peritoneal Surface Oncology Group International | PSOGI logoThis quarter, we found Purposeful Reading with a newsletter from PSOGI chairman and CRS/HIPEC pioneer Dr. Paul Sugarbaker, a handful of articles.

PSOGI World News (1)

  • Section 1: Progress in Clinical or Laboratory Research: A Classification of Pseudomyxoma Peritonei Based on the Natural History of the DiseaseA classification essential for the surgeon to assess prognosis after CRS and HIPEC (Dr. Sugarbaker)
  • Section 2: The back story on Center of Excellence, The Basingstoke (Dr. Sugarbaker, edited by Tom Cecil)
  • Section 3: Listing of upcoming events
  • Section 4: Alternatives to traditional HIPEC, a peak at Radspherin®, a novel alpha-radiopharmaceutical for intraperitoneal administration to combat residual microscopic disease following CRS with or without HIPEC (Stein Gunnar Larsen,Roy Hartvig Larsen, Øyvind Sverre Bruland)
  • Section 5: Pioneers of progress in peritoneal surface malignancyWho was John Stricklin Spratt, Jr., MD? (Dr. Sugarbaker)
  • Section 6: Focus on active PSM protocols, Peritoneal metastasis in gastric cancer treated with bidirectional approach comprising PIPAC and systemic chemotherapy (Shigeki Kusamura)
  • Section 7: Editorial comments

PSOGI Website (2)

Calculating the Peritoneal Cancer Index, October 2016
Who is candidate for CRS/HIPEC? Opinion from Dr. Sugarbaker, July 2016

Cancer-related Articles & Studies (8)

Research reveals how fructose in diet enhances tumor growth, (Talia Ogliore, Washington University) December 2024
The Landscape of Circulating Tumor DNA (ctDNA) in Appendiceal Adenocarcinoma, (Various) December 2024
Leading Edge of Cancer Symposium, MD Anderson Center
– ABSTRACT: A Prospective Randomized Crossover Trial of Systemic Chemotherapy in Patients with Low-Grade Mucinous Appendiceal Adenocarcinoma (Submitter Dr. Abdelrahman Yousef, MD Anderson) December 2024
– ABSTRACT: Goblet Cell Tumors of the Appendix: Clinical & Molecular Features, (Submitter Dr. Abdelrahman Yousef, MD Anderson) December 2024
POSTER (Submitter Dr. Abdelrahman Yousef, MD Anderson) December 2024
– ABSTRACT: Utility of plasma tumor marker levels in management of patients with appendiceal adenocarcinoma (Submitter Dr. Abdelrahman Yousef, MD Anderson) December 2024
View the full book of abstracts and symposium posters on OpenWorks @ MD Anderson
Stressed out? These 8 skills can help boost mood and reduce anxiety (NPR) September 2024

Got a resource to share with our Pals community? Email us the link for our next article round-up.

John R., Caregiver Companion

John R., Caregiver Companion

John Razzano quickly slid into role of family caregiver when his wife, Mary, was diagnosed with our rare cancer in 2014. That meant playing head nurse, chief paperwork officer, cheerleader, and patient advocate. “During that time, I felt alone and isolated trying to navigate the physical, emotional, and psychological elements of Mary’s treatment. Mary succumbed to the disease in late 2015, and one year later my adult son was diagnosed with Hodgkins Lymphoma. I shared caregiver duties with my future daughter-in-law and today, my son is healthy and in remission.”

During this time, John started a support group with Dr. Fran Baumgarten at UCSD for family caregivers of cancer patients to let people know a community exists willing to support and hold up its fellow caregivers. “We created the podcast, Caregiver Companion to let caregivers know they are not alone. We launched in December 2023, and we now have 10 episodes and publish every two weeks. I think it’s a very useful resource for caregivers. I hope you enjoy it and find it useful.”Caregiver Companion, A Guide to the Family Caregiver of Cancer Patients is available via Spotify and Apple Music. Add to your playlists and leave a review.