When you are living with a rare disease like appendix cancer/PMP, you can feel isolated and lonely. No one around you really knows what you are going through. That’s why PMP Pals offers several programs to connect patients and caregivers to support each other and build the emotional resilience you need to meet the challenges of this disease.
Click on the links below to learn more about our great programs and to join in. And, caregivers, these programs are not just for patients, they are for you, too. A boost of peer support may be just what you need to get through a tough day.
Every week, patients and caregivers meet through Zoom to encourage each other and talk about topics of interest like treatments, nutrition, and strategies to handle the emotional stress of the disease. Once a month, we invite a leading medical specialist to make a presentation. PMP Pals moderates the meetings, and everyone is welcomed.
If you are newly diagnosed or even just new to PMP Pals, we want to send you a Starter Kit. This bag of practical little items will help you with daily situations. It’s our way of letting you know that PMP Pals is here as a resource to you.
GET WELL CARDS
This is one of our oldest and most popular programs. Sign up to receive cards when you are facing surgery or another challenging situation. Many of you who have received cards are inspired to do the same for others – if you would like to be a card writer, please use this email to volunteer.
BARE BOTTOM BEARS
We will send you a cute little bear, appropriately dressed for the hospital, as you head for surgery or other challenging treatment and find yourself in need of a smile.
Though many Pals love the group support and wisdom in Zoom meetings, others may prefer more private, one-on-one conversations. Our mentor program will find another patient or caregiver volunteer to answer your questions, share their experiences, and listen to your concerns. And, if you want to volunteer to serve as a mentor, please email email@example.com.
Have a question about PMP Pals or about appendix cancer/PMP? Send us an email, and we’ll get back to you. We’ll use our years of experience helping patients and caregivers and working with supportive specialists to find an answer for you. Of course, we cannot provide medical advice, but we can help you find medical providers who know this disease. And, we can share the patient or caregiver perspective on matters like preparing for a hospital stay, getting through chemo, or post-surgery recovery.
Arthur Rettig, “Ask Arthur,” a retired pediatric surgeon and PMP survivor and longtime PMP Pal. Arthur is available to answer questions and provide information. Clinical decisions involving patient care must be made exclusively with the treating surgeon and oncologist.
PMP Pals is a sponsor of the Facebook Appendix Cancer Support Group a private, lightly-moderated forum with more than 4,000 followers who share experiences with each other. We invite you to follow PMP Pals on these channels to stay informed.